Category Archives: Uncategorized

Dexcom: crash and burn

After the first night with dexy I was a little less enthusiastic. During the day I had noticed that the app would crash every time I would open it but since I silenced all alarms on my apple watch I didn’t think too much about it. I was very happy when dexy woke me up to a low relatively in time. I turned off the alarm, or so I thought, and got out my sugar tablets. I had set all alarms to vibrate so was quite shocked when after five minutes my alarm went off again; full volume. Its safe to say my husband was not too pleased…. I tried turning the alarm off again but every time I would open the app it would simply crash. If I would open up the app again the alarm would be gone but nevertheless it would go off after 5 minutes again. I ended up just turning off the alarm, waiting until I was out of the alarm zone and then turning them back on. This was not making me a happy chappy….

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Dexcom: initial excitement

The days before I am getting the Dexcom (G5) I am extremely excited. I simply cannot wait to try it out. Can it really live up to the hype? Is it really as good as others have told me? How will it be to not check my blood sugars on my pump but on my apple watch?!

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Medtronic vs Dexcom

My four years are up. It’s that time I get to choose a ‘new’ pump. A difficult choice since I will rely on this piece of technology to keep me alive every day. Currently I still have the Medtronic Veo (530 in USA) and roughly 0.5-0.75 years after I got this ‘new’ pump the 640G came out. Now the hybrid closed loop 670G is already out in the states but it most likely won’t come to Europe/Austria until the end of 2018. There are rumors the 670 might not reach Europe at all as the next version supposedly is coming soon. However I do feel that if I choose the 640G now I’ll have outdated software soon. I’m also not buying the iphone 5 anymore when the iphone 8 is already out. On top of that I’ve not been happy with the Medtronic sensors in combination with my veo pump. And then to think that these sensors will determine if my insulin will be shut-off for hypo’s or not. Currently, by the time I have already solved my hypo, my sensor usually gives me an alert. I have a whole lot of doubts and questions and for the first time in my life am really unsure about my next pump choice and feel a little unsatisfied with the choices. In Austria we currently only have the choice between the Medtronic 640G, omnipod, Ypsopump, Accucheck combo und Accucheck insight. All of these pumps have been on the market for quite some years and I just feel I would be majorly settling. I have heard quite some good reviews from my friends in the Netherlands about the Kaleido pump but so far this is only available in the UK and the Netherlands. I was actually really excited about the t:slim but this still hasn’t reached Europe yet although I’ve read online its coming to Scandinavia soon.

After always going for Medtronic without a doubt I feel myself at a loss. I am really sick of the Medtronic sensor inaccuracy and have decided to request a Dexcom trial. If I chose a Dexcom the pump market all of a sudden opens up as well, I feel like although there are a lot of options no matter what I chose I will make the wrong one. I would just really like to have something new, fresh and something that works well! For the next 1,5 weeks I will have a Dexcom at my disposal and a friend of mine has been so kind to lend me his 640G now he is using and old Medtronic pump to close-loop. A chance for me to try my options and see what the pros and cons are before I’m stuck with something for the next 4 years.

Read my other dexcom/medtronic reviews here:
Dexcom: initial excitement
Dexcom: crash and burn

Ja ik wil………………………………omlaag !!!!!!!

Origineel in twee delen verschenen op https://www.diabetestype1.nl/blogs/dagelijks-leven/48-ja-ik-wil-omlaag-deel-1-de-combi-trouwjurk-en-insulinepomp

Begin mei was het dan zo ver; mijn meisjesdroom kwam uit. Eindelijk mocht ik mijn fantasie gaan beleven; ik ging trouwen.

Al vrij kort na het moment van verloven begon ik al gekscherend grapjes te maken; zie je het voor je, op het moment dat we ja moeten zeggen ik in een hypo zit en te traag reageer. Of dat net voor ik binnen kom lopen ik een hypo voel, de deuren open gaan en ik suiker in m’n mond sta te proppen? Ik had er een leuke diabetes comedy film over kunnen maken. Hoewel het enigzins overdreven was zat er wel een kern van waarheid in, enigzins zorgen had ik wel over hoe mijn suikers zich zouden houden op de bruiloft. Maar dat duurde nog zo lang; dat zien we dan wel weer.

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I do……. not want to be this high

At the beginning of May all my dreams were finally coming true; I was going to marry the man of my dreams.

Shortly after the engagement I already started making ‘jokes’ I would be so low at the altar I wouldn’t remember to say I do. Or that I would feel a hypo coming on just before the doors open and when they open I am stuffing my face with food. My imagination was giving me plenty of ammo to make some great diabetes memes about all the funny-not-so-funny scenarios. Although these situations were slightly (?) exaggerated they did hold some truthful worries about the combination of my diabetes and my wedding day.

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De tijd vliegt

“Time flies when you’re having fun”, een toepasselijk Engels gezegde. Want man, wat gaat de tijd snel als je verloofd bent, maar ook als je een nieuwe baan begint, als je gaat verhuizen; laat staan als al deze dingen tegelijkertijd gebeuren! Inmiddels ben ik getrouwd met een fantastische vent, hoewel de diabetes probeerde aanwezig te zijn op de bruiloft stal ik de show maar daarover in een latere blog meer. De trouwfoto’s kunnen elk moment komen; erg spannend! Hopelijk zit er ook een mooie met mij en mijn pomp bij en zal er op korte termijn een blog volgen over mijn diabetes-bruiloft ervaringen, tips en vooral suggesties waar je die pomp nou moet laten!

Afgelopen mei zijn we verloofd en sinds dien zijn dingen van goed naar beter gegaan. Ik vond mijn perfecte PhD baan, weliswaar in Wenen, Oostenrijk, dus was een verhuizing noodzakelijk. Vriendlief stond open voor dit avontuur zolang de bruiloft maar op dezelfde datum en dezelfde plek plaats zou vinden. Aangezien bijna alles al geregeld was toen deze baan mij aangeboden werd leek dit wel een goed plan.

Hier zijn we dan, getrouwd, verhuisd middenin het onbekende. Het was mijn eerste verhuizing sinds dat ik glutenvrij eet; dit was zeer irritant, veroorzaakte wat hick-ups maar niet zo intensief als alles wat er voor de diabetes geregeld moest worden. Wat ben ik mijn moeder dankbaar voor alles wat die altijd gedaan heeft! Zo soepel als onze verhuizingen tussen Nederland en Duitsland altijd gingen had ik de hoeveelheid werk iets onderschat. Zes maanden verder heb ik bijna alles onder controle maar nog steeds is niet alles geregeld. In ieder geval voldoende animo voor nieuwe blog posts, een boel nieuwe plekken om mijn ervaringen over te delen en toe te voegen aan de wereldkaart; werk aan de winkel! Deze suikerzoete kaaskop is terug van weg geweest, klaar om de Vienna-edition van deze blog voort te zetten.

Beer festival

My boyfriend is a huge beer geek.

His newest ‘prize’ is a climate fridge. Usually a fridge like this is used to store/age bottles of wine. For those of you who don’t know (and I honestly don’t know how many other gluten free people know this much about beer), but beer can also be aged. Each shelf has a different temperature and is definitely better than the 30+ C it can sometimes get the living room. A few of my gluten free bottles of beer/cider are allowed in there, the rest is banned to the ‘normal’ fridge of the closet. When he suggested to go to a beer festival I wasn’t overly enthusiastic. I’ve been to a few and although their nice I only get hyped up on diet coke. However, he had invited a befriended couple which made it more appealing for me to go.

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It’s a low-carb life for me

In my last post I shared my personal feat of baking something which tasted delicious despite it being low-carb and gluten free. Yet why challenge yourself with low-carb when gluten and dairy are also not your friends? Recently I discussed my fear of the return of the insulin allergy; the less insulin you require, the less chance there is of the allergy coming back. Besides, every person living with diabetes knows that insulin promotes fat storage, so less insulin really can’t do any harm.

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Sugarsweet irony

Every month the Dutch Diabetes Association brings out a magazine. For the March issue, which arrived this weekend, I gave an interview about my insulin-allergy-adventures. It remains a unique situation with very little knowledge, and, even more important, very few other people you can contact and exchange experiences with.

In November I met the journalist for some thee, and filled with hope I re-capped an excellent year. How different my life has been since I received the treatment! My sugars are getting better, I still run with my dad once a week for fun but not necessarily anymore for safety reasons and the other two times a week I was happy to go alone. It is safe to say that I was enjoying the ‘normal’ diabetes life !

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